THE Llandudno Parkinson’s support group held a special celebration at the Quay Hotel in Deganwy on July 1 to mark its 15th birthday.
The group, formed back in 2009, provides support to people affected by Parkinson’s disease - this includes people living with a diagnosis, their carers and families.
The group provides a varied programme of activities, including art, singing, physical activity and a monthly carers’ meeting.
It provides an opportunity for people to connect, share their experiences and provide mutual support.
Due to popular demand, the group has grown from the original monthly meetings to a weekly gathering every Monday.
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Parkinson’s, for which there is no cure, affects about 153,000 people in the UK, including roughly 8,300 in Wales, and every hour two more people are diagnosed.
There are more than 40 symptoms, from tremors and pains to anxiety.
The Llandudno support group was established thanks to the support of consultant Dr John Hindle.
Its first meetings were held in the waiting room of his Parkinson’s clinic at Llandudno General Hospital.
The group quickly outgrew the waiting room, so with the help of its founding members, Alison and John Underwood, a new location was found at the Maes Cwstennin retirement home, which was provided for free.
This was the group's home for approximately two years, until it had raised sufficient funds to pay for a larger venue, when it moved to its current home at St Michael and All Angels Church Hall in Llandudno Junction.
Beverley Pounder, who regularly attends the group, said: “After receiving a Parkinson’s diagnosis, it can be difficult for people around you to understand the impact, no matter how supportive they may be.
“This in itself can be isolating as you’re left to deal with all the emotions on your own.
“When a friend suggested I should go along to a local support group, I decided to see what it was like and I’ve never looked back.
“Joining a support group like the one here in Llandudno was the best decision.
“Everyone is so friendly and supportive, and being part of this community has helped me with reducing stress and anxiety, directed me to useful advice and information and made me realise that I’m not alone.”
Elaine Evans, who sits on the Parkinson’s UK board of trustees and is the treasurer of the Llandudno support group, added: “Since being diagnosed with Parkinson’s in 2000 at the age of 47, I’ve been determined to live life to the fullest.
“But everyone is different and the support group gives me the chance to hear about other people’s experiences whilst also sharing my journey.
“There’s a real sense of community here and we all genuinely care for each other.
“I have no doubt the group will continue to have a lasting impact on the lives of those living with a diagnosis and their carers and families in the Llandudno area.”
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